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*ALERT - ON HOLD* FDA Patient-Focused Drug Development (PFDD) program

Date and time is TBD - ON HOLD

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Virtual Meeting

The National Organization for Rare Disorders (NORD) and the PAP Foundation are hosting a virtual meeting under the FDA's externally led Patient-Focused Drug Development (PFDD) program. The goals of this EL-PFDD meeting are to provide researchers, drug developers and U.S. Food and Drug Administration

*ALERT - ON HOLD* FDA Patient-Focused Drug Development (PFDD) program
*ALERT - ON HOLD* FDA Patient-Focused Drug Development (PFDD) program

Time & Location

Date and time is TBD - ON HOLD

Virtual Meeting

About the event

Are you a patient or caregiver for an individual living with Autoimmune Pulmonary Alveolar Proteinosis (aPAP)? Join us on February 5th to participate in the largest-ever virtual meeting of the aPAP community and help us accelerate research by sharing your experiences. 

 

The National Organization for Rare Disorders (NORD) and the PAP Foundation are hosting a virtual meeting under the FDA's externally led Patient-Focused Drug Development (PFDD) program. The goals of this EL-PFDD meeting are to provide researchers, drug developers and U.S. Food and Drug Administration (FDA) with an understanding of patients’ and caregivers’ experiences with aPAP, including how people view their quality of life, which aspects of the disease are most problematic, and what actions they currently perform to treat and cope with this disease. 

 

LEARN MORE AND REGISTER HERE

 

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