One of my friends was recently diagnosed with PAP and is having a very hard time dealing with the shortness of breath. She has had a biopsy done, no cancer, but she is scheduled to see a pulmonary specialist near her next week. I've been reading about lung lavage and some of the clinical trials. I'm trying to learn as much as I can so I can help her. Should we be looking for a pulmonologist who deals specifically with PAP or is it okay to see any pulmonologist? Having gone through pancreatic cancer with my dad, I learned that the local doctors aren't necessary qualified to offer treatment options. We're about 2 hours away from NIH. Would that be a better option? Does she need a referral to go there? How does that process work? Thanks!