New to Leukine

I read that Savara has been granted “Breakthrough Therapy Designation“ for development and review of Molgradex for apap. Does anyone have more info on this?

I have a quick question in regards to inhaled GM-CFS. What is the best solution to use when mixing the GM-CFS. The document that comes with the medication does list a few different options. If I use distiled water the shelf life in the documention mentions that it only good for a max of 6 hours. I will be splitting the bottle into 2 (every 12 hours).. So disstilled water wouldn’t be an option for the second dose. Other option is bacteriostatic water which give a shelf life of 20 hours or day (sorry don’t have the paper work handy). With the bacteriostatic i google it in regards to using it in a nebulizer and there are issue with it causing bronchitis. I anyone could help fill me with some information and the best way to do this it would be great as i can not find a lot of information in regards to this. Thank you, Daryn

Hello fellow PAP survivors! I wanted to start some discussion regarding inhaled Leukine for PAP treatment. I was diagnosed in Dec, 2017 and had my lavage in Denver with Dr. James Ellis. I have been on inhaled Leukine (250mg per day) since then and although my lungs are still cloudy on the xrays, my O2 levels are pretty good during the daytime (unless I exert myself) but still need oxygen at night. Would increasing the dose to twice per day help clear the lungs better? Anyone else have input on dosage with leukine and how long to see results? Thanks!