I've recently been ordered the inhaled Leukine treatment and received it in the mail just yesterday. I've read all the literature and attended the PAP Education Day in Cinncinati, so I feel confident that this is the treatment for me. But before I take the first dose, I'd like to hear if anyone has experienced any side effects from the inhaled treatment? I'm a nurse, so I know any of the listed reactions are possible, but would rather hear what is most likely, if anything. Any thoughts? Thank you in advance for any reassurances.
Daryn Wynne
Jun 27I have a quick question in regards to inhaled GM-CFS. What is the best solution to use when mixing the GM-CFS. The document that comes with the medication does list a few different options. If I use distiled water the shelf life in the documention mentions that it only good for a max of 6 hours. I will be splitting the bottle into 2 (every 12 hours).. So disstilled water wouldn’t be an option for the second dose. Other option is bacteriostatic water which give a shelf life of 20 hours or day (sorry don’t have the paper work handy). With the bacteriostatic i google it in regards to using it in a nebulizer and there are issue with it causing bronchitis. I anyone could help fill me with some information and the best way to do this it would be great as i can not find a lot of information in regards to this. Thank you, Daryn
Hi dko,
Our daughter has been on inhaled 250mcg leukine since Dec. 2014. She is doing amazingly well and experiences zero side effects. Wishing for you clear lungs in 2019!!!
Hi dko
My husband was on 15 liters of oxygen when he began taking inhaled Leukine in 2011. He had no side effects from the medicine. He went into remission for over a year, then the PAP came back. Now he’s back on inhaled Leukine again and takes 500 mcg. daily with his Recovery Concentrator. He is doing really well. No oxygen needed. He’s had no side effects from the Leukine.