Please save the date for our next Patient Education Day: Sept. 30, 2019 in Yale University, in New Haven, CT. Details to follow. We hope you will attend.
Physicians, patients, family members, and caregivers are all invited to attend.
Current updates on all things PAP will be covered, as well as opportunities for each family to ask questions of our PAP experts.
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Gigi
Jul 16
has anyone been passing out or having light head feelings on Leukine?
Judith Sumner
Jul 16
Hi Gigi, I checked with Tisha Wang, M.D., Vice-President and Clinical Director for the PAP Foundation, regarding your question. Her response: that is a very unusual side effect and she should touch base with her doctor to investigate other causes of those symptoms.
I hope you get your answers soon.
Best, Judith and Dr. Wang
Judith Sumner
Aug 1
Patient Education Day: Sept. 30, 2019 in Yale University
PAP friends and family, please fill out this RSVP form if you plan to attend the PAP Education Day at Yale in New Haven, CT on September 30th! This will help us get a more accurate idea of how much food to bring and how many lovely faces we can expect. Thank you! https://form.jotform.com/92041275904151
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Howdy PAP Family, Once again I am hosting the 3rd Annual Golfing for a Cure Golf Tournament on June 29th, in Littleton, Colorado. If you are interested please take a look at our upcoming events on our home page or contact me, Steve Park. You may also make a donation to honor a family member of friend who is struggling with PAP. All sponsors/donors will be recognized in the program and at the luncheon after play. PAP patients are also invited to the luncheon where you can meet other PAP patients and doctors. Thanks for Your Support! Steve Park - PAP Survivor and 2nd VP PAP Foundation
Please delete this if it is not allowed, My Name is Lacey, I am a senior Respiratory student at Polk State College in Lakeland Flordia and as my senior case study project i am interested in presenting on PAP. I have come across a couple questions that i cant seem to find to answer to on google and was wondering if i could get some extra assistance through here. I have read in many articles that PAP is commonly misdiagnosed and I am in search of a statistic of how often and what it is usually miss diagnosed as. I have read that it is commonly misdiagnosed as pneumonia and ARDS and was curious if there is one that prevails over the other? I have also hit an issue regarding the GM-CSF treatment, some of the pages I have read call it "GM-CSF" while others have called it "RHGM-CSF" but I cant find anywhere that talks about the significance difference between them and some places call it by both names. are these technically the same thing? any information, assistance or links anyone can provide would be greatly appreciated.
has anyone been passing out or having light head feelings on Leukine?
Hi Gigi, I checked with Tisha Wang, M.D., Vice-President and Clinical Director for the PAP Foundation, regarding your question. Her response: that is a very unusual side effect and she should touch base with her doctor to investigate other causes of those symptoms.
I hope you get your answers soon.
Best, Judith and Dr. Wang
Patient Education Day: Sept. 30, 2019 in Yale University
PAP friends and family, please fill out this RSVP form if you plan to attend the PAP Education Day at Yale in New Haven, CT on September 30th! This will help us get a more accurate idea of how much food to bring and how many lovely faces we can expect. Thank you! https://form.jotform.com/92041275904151