Interested if anyone has symptoms of Covid19 / confirmed diagnosis with APAP AND how doing. I had mostly cleared lungs after inhaled leukine. Lung lavages only bought me time prior to the leukine, injected leukine didn't help. the amount of PAP in my lungs had increased about 9 months ago. restarted leukine, have not had a follow up CT to evaluate effectiveness, but pulse ox is mid/upper 90's at rest. some desats low 90s high 80s with activity and only slightly winded. i started 2 weeks agobwith red eyes, swollen right greater than left. next day go symptoms lasted for a few days. since just fatigue, feeling something off. Now into day 4 of fevers from low grade to maybe 102 using an old oral and a no touch thermometer, with head ache and ringing in ears and fatigue, which seem to be related to fever. brief dry cough woke me this am .working remote and don't qualify for testing. i am not on any nebs orn inhalers. symptoms seem to suggest covid, and hoping I don't get any respiratory, just wondering if anyone out there with covid and how progressed, symptoms were managed.
thanks. stay
Hi, I am sorry your having these issues, I do not have covid at all, I was just having a bad day, If your a patient of a major hospital or even contact our wonderful team of doctors on the pap web site they may be able to help you and give you better information before you really get too sick. Best to you and I am again sorry your having issues.
Hi Randlandtv,
I'm so sorry to hear you are not feeling well. I touched base briefly with Dr. Wang regarding your post. Thankfully, she is not aware of any PAP patients with Covid-19 and does believe with your fever you are a candidate to be tested. Please take care of yourself. Our PAP community wishes you quick resolution to these health concerns. Our best to you. judith
@randlandtv I am so sorry to hear about your illness. If you don't mind me asking, where are you located? I would be happy to reach out to your nearest testing center (assuming there is one near you) or to your doctor directly and advocate for your COVID-19 testing. Those with PAP - although there is no clinical data on point - logically are among the higher risk groups and should be given preference when making any testing determination.
hi. thanks for reply. in maryland. just got tested through work. while I am non clinical work, prn, remote said 24 to 48 hrs for results.
@randlandtv that is good news -- thank you for letting us know and please keep us informed how you are doing. Also if you would like to share but want to keep things more private, please feel free to email me directly at chrish@papfoundation.org
For those interested in learning how COVID-19 impacts the lungs, link to the following visual representation of disease progression: LINK
In Belgium the nummers are going down, but I quarantined myself. I started 2march. I am not going out. My wife goes to the shop with gloves en mask. And I don't let anyone in the house. I hope it will soon be over. This is horrible. And people don't understand the danger. This is a ghost war and enemy.