Hi! I wanted to get to know people with PAP. I have friends with other illnesses but, with how rare PAP is, I don't know anyone who really understands exactly what living with PAP is like. I wanted to start by introducing myself.
HI! I'm Faith and i'm 23 years old and I was diagnosed with PAP just over a year ago. I got lucky and was diagnosed just 6 months after beginning to show symptoms. I was an archaeology major in college and it's currently believed that I inhaled something while on a dig that triggered the autoimmune PAP. So, obviously I had to slightly tweak my career plans. Now i'm a masters student in cultural anthropology. No more dirt for me.
At current, i've had 8 lung lavages and have struggled with the treatment. I had a rare side effect to the inhaled leukine which ended up causing more harm than good so i'm back to trying to get the injections to work. If it doesn't work I will need to explore more aggressive forms of treatment.
Also I like Disney, bad Sci-Fi movies, and all of the carbs I shouldn't be eating.
Who are you?