After my fifth annual lavage ended badly with only one lung cleaned I decided to try something my pulmonary doctors soundly rejected and began treating my PAP as part of a whole body lipid disorder. I have had my gallbladder removed, very high triglyceride and low HDL levels. MY AST And ALT levels were always slightly elevated and have had two fatty lipomas removed. I know that I have had lipid disorders and fatty liver since childhood, when at 18 I was given a range of medical tests because my father had died from "idiopathic" multiple myloma.
In 2016, I had some surprising success with Gemfibrozil prescribed for high triglycerides, but believe its use caused a huge weight gain. I stopped taking it and my PAP came back quickly necessitating a lavage only two months after I stopped taking it. I believe Gemfibrozil also led to bile stones forming in my liver, however the formation of bile stones in my liver has probably happened before without causing blockages..
I have done a lot of my own research. When I was prescribed Ursodiol, a synthetic form of bear bile I recalled a study showing that when the bile combined with stomach flora in the proper aqueous solution, the bile would bind to lipids in the blood and prevent their depositing in the body and by extension in my lungs. I asked my PCP for a water pill and was prescribed Spironlactone. I also only drink non chlorinated water, eat Greek yogurt and Kefir to promote gut flora. There is nothing toxic about this combination I am told by physicians so trying probably could not hurt. Consult with your PCP.
Recent test from Cincinnati confirm an abnormal antibody level of 49, which is half the level of two years earlier. But 14 months after the last lavage failed, my lungs are clean. It may not be a cure, it may not last and I may be fooling myself, but something is very very different. Contact me.