Greetings to everyone,
My father has been diagnosed with PAP back sometime in 2011. Initially, he was diagnosed with chronic myelitis leukemia in 2008 and is still taking Gleevec as a precaution. However, later testing showed he has PAP and his doctor is just watching him for the day he will eventually need WLL.
I cannot deal with this negligence any longer as his respiratory activity has become worse this year. I have seen what this country's health care system is like first handed through my own experience of being neglected and mismanaged. *(At age 18 I had my gallbladder removed but was still experiencing pain over the following 5 years. I was told it was all psychological even though I was in the ER multiple times when the pain was overwhelming. I was on Medicaid in a town with a median income level of 45k (Bridgeport, CT). I flunked out of college. There was no way of concentrating on studies with the level of pain I was experiencing almost every night. I had to run away from home due to my difference in religious beliefs with my family as I was brought up in a cult, which I was able to realize during my college years. My last episode of pain landed me in a hospital that was in a high income town with a median income of 97k (Greenwich, CT). With one Upper endoscopy procedure, the hospital figured out my issue that the previous hospital couldn't figure out in 5 years. I haven't been back to an ER since.)
I understood money is a vital resource for elongating one's life and have pursued it as my life mission over the past 7 years of leaving home. In that time, the medical community's advance in finding an alternative treatment for PAP is a breakthrough in saving my father for me. I am now a commercial real estate broker in manhattan and learned much more on how this world operates. I am disappointed, but I guess it's life.
I have been able to contact my family once again after all those painful years of being apart and have learned of the progress of my father's symptoms. I grew up watching him lash out in anger and fear of an inevitable death. I resented him when I was young but I understood the pain he's going through. I want to give him hope and strength to live at least 30 more years of life I know he has in him.
Please, someone please tell me how I can go about getting GM-CSF treatment for my father in the New York/Connecticut region. My father's condition is progressing as he cant even walk a flight of stairs without experiencing shortness of breath. He is a first generation immigrant and have been working as an essential worker as a truck driver in these unprecedented times of the Covid19 pandemic. I cannot bare to know he's living a painful life any longer. I sincerely beg you, someone please tell me the way to get treatment.