General Topics

Greetings to everyone, My father has been diagnosed with PAP back sometime in 2011. Initially, he was diagnosed with chronic myelitis leukemia in 2008 and is still taking Gleevec as a precaution. Howe

Hello, I'm Courtney. I'm 31 and I was diagnosed in 2018 with aPAP. I had my first WLL November 2019. I was supposed to get the inhaled luekine but my insurance is kicking it back. Since the wash, my o

I am Dieter , live in Belgium and have "Apap". what are the consequences with the arrival of the corona virus for people with the desease . How can i protect myself? thanks

Please delete this if it is not allowed, My Name is Lacey, I am a senior Respiratory student at Polk State College in Lakeland Flordia and as my senior case study project i am interested in presentin

My name is Lana Wadley and I was diagnosed with PAP in 2014 a few months after my mom passed with Pancreatic Cancer. It’s funny, that some people have told me they have gotten ill after their paren

1st Annual National PAP Education Day to be held concurrently with the 2018 Rare Lung Diseases Conference (RLDC) ​ Marriott Rivercenter 10 W Rivercenter Blvd, Covington, KY 41011 a PAP Foundation & Sa

Hi fellow PAP survivors! Im curious if anyone here has gone scuba diving with PAP? I really want to get certified and I physically feel great but Im quite anxius knowing I have this lung condition and

Wondering what the PAP community is thinking about COVID vaccine(s)? Are PAP patients generally considered to be immune-compromised? If so, is the Pfizer vaccine okay - safe for PAP patients? I'm h

Interested if anyone has symptoms of Covid19 / confirmed diagnosis with APAP AND how doing. I had mostly cleared lungs after inhaled leukine. Lung lavages only bought me time prior to the leukine, i

Please save the date for our next Patient Education Day: Sept. 30, 2019 in Yale University, in New Haven, CT. Details to follow. We hope you will attend. Physicians, patients, family members, and c

I am posting this because the Interferon that I took for treatment of Melanoma seemed to cure my PAP and I want to put it out there to patients as a possible treatment. I was diagnosed with PAP in O

In April 2017, I was hospitalized after having severe shortness of breath and fatigue. The doctors told me I had viral pneumonia (RSV). Since it was viral, there was no treatment and I just needed to

Hello Fellow PAP Family! The first annual “Golfing for a Cure” golf tournament is scheduled for August 12th at the Raccoon Creek Golf Course in Littleton, Colorado. Details can be found on the donate

After my fifth annual lavage ended badly with only one lung cleaned I decided to try something my pulmonary doctors soundly rejected and began treating my PAP as part of a whole body lipid disorder. I

My Game Needs This is a Sports Lover’s blog where we have tried our best to give an easy snapshot of the Best Sports Equipment Available in the US market based on Price, Bestselling & products reviews

Hi I am feeling a little overwhelmed about everything that is going on, Is anyone out there feeling the same, and I am not on face book too often so this is my way to communicate

Howdy PAP Family, Once again I am hosting the 3rd Annual Golfing for a Cure Golf Tournament on June 29th, in Littleton, Colorado. If you are interested please take a look at our upcoming events on ou

At the recent Rare Lung Disease Conference in Cincinnati I made comments regarding my case of PAP and how estrogen receptor issues were the most likely cause. The majority of evidence points to my exp

Hey everyone. So I guess I'm a rare case. This is my 2nd time having PAP. The first time, I went into remission without any lavages, gm-csf injections etc.. The doctor had said I had a mild case. I m

Just found this site. Good information. I was diagnosed in 2015. I live in Missoula,Montana so we had to go to Seattle, Wa for my first 3 washing. I had 2 more last summer while I was doing chem