PAP Discussion Forum

It might not seem very important, but it can be disheartening for anyone who comes here looking for help to just see a wasteland of spam posts. Also makes the useful posts harder to find. Does the board have an admin? Can they make anyone else a moderator or something like that?

Has anyone gone into remission with PAP? If so, did you have to keep taking Leukine or another medication for PAP? Thank you

I read this article, which suggest there could be a link between high cholesterol and PAP: and I was wondering if anyone had had any similar results? As in, have you ever had your cholesterol measured, and was it high? Or if you've seen this, have you tried lowering your cholesterol, and did you get any results? I've been following general guides to lower mine, like this: but haven't really noticed any improvement so far. But then I don't know what my cholesterol was to begin with or what is now. I was diagnosed with PAP in late 2019, kind of by accident, but since then my shortness of breath has increased. My O2 is often 85+ with general activity, and 70+ when exercising. I had a surgical consultation, and they felt the risks of surgery were high, and it was only worth doing a WLL if my quality of life significantly worsened. Other than SoB, I often have one bout of coughing each day, but otherwise live normally.