Info & Diagnostics:
The PAP Foundation is a proud partner of the RLDC.
for PAP Patients
Savara Pharma is looking for PAP patients, caregivers for PAP patients and Healthcare Professionals (HCPs) who take care of patients with respiratory diseases for a usability study.
The study will take place later this fall and would consist of a 2.5-hour visit to a study facility. The participants will receive compensation for their time ($200 for patients/caregivers and $500 for HCPs). During the testing session, each participant will be trained to use a nebulizer to simulate a treatment (participants will not inhale any medication/placebo).
If interested, please contact Lianne Griffin (firstname.lastname@example.org) to set up a time to find out additional details.
Phase 1 oral drug Pioglitazone trials are NOW ACTIVE for the East Coast (Cincinnati) PAP Clinical Center ONLY - CLICK HERE FOR DETAILS
If you suffer from PAP and are interested in learning about the clinical trials, or would like to receive updates and news about the fight against PAP, please complete the below to be on our contact list.
Sign up with the National PAP Registry:
You are eligible to sign up for the
National PAP Registry IF:
(1) You have been diagnosed with PAP by a doctor and (2) you are able to provide written informed consent.
The PURPOSE of the PAP Registry is to assemble and coordinate the PAP community to accelerate research and improve our understanding, diagnosis, and treatment of PAP.
If you are eligible and would like to participate, please
New PAP Blood Spot Diagnostic Test:
[Instructions & Procedures to obtain, complete & submit test - Coming Soon
RAW PAPKit Instructions can be accessed by CLICKING HERE]