Important Resources

Web site

American Lung Association

http://www.lungusa.org

American Thoracic Society

http://www.thoracic.org

National Heart, Lung and Blood Institute

http://www.nhlbi.nih.gov

National Institutes of Health

http://www.nih.gov

National Organization for Rare Disorders

http://www.rarediseases.org

Rare Diseases Clinical Research Network

http://rarediseasesnetwork.epi.usf.edu/

Rare Lung Diseases Consortium (RLDC)

Office of Rare Diseases

http://rarediseases.info.nih.gov

National Home Oxygen Patient's Association

http://www.homeoxygen.org