PAP Foundation - Contact Registry/title> <script language="JavaScript">  </script> </head> <body onload="FP_preloadImgs(/*url*/'Buttons/B-Join-G-MO.jpg', /*url*/'Buttons/B-Join-G-P.jpg')"> <table class="grouptable" id="tblDesc" width="700" border="0"> <tr> <td class="bodymedbold" align="middle" colSpan="2"> <div> <font face="Arial" color="#0000FF" size="5"><b>Description and Purpose of the Contact Registry <br> </b></font><font face="Arial" color="#FF0000" size="2"> <a href="Old%20Pages/support.htm"><font color="#FF0000">Back to Main Support Page</font></a></font></div> </td> </tr> <tr> <td colSpan="2"> <div class="bodymed"> <font face="Arial"><br> Thank you for your interest in the Contact Registry. </font> <p><font face="Arial">The purpose of this Contact Registry is to provide an opportunity for individuals with PAP and other rare disorders to register themselves to receive information about clinical research that is or will be conducted by the <b>Rare Lung Diseases Consortium (RLDC)</b>. You may also learn about progress being made towards treatment advances by researchers who specialize in your disease or disorder.</font></div> <div class="bodymed"> <font face="Arial"> </font></div> <div class="bodymed"> <font face="Arial">By joining the Contact Registry, you will be asked to provide information about you (or your child) and how you can be contacted. The registry will use that information to contact individuals who might qualify for participation in a research study. We may also use your contact information in order to communicate with you about treatment information and sources. </font></div> <div class="bodymed"> <font face="Arial"> </font></div> <div class="bodymed"> <font face="Arial">Because of their rarity, researchers often have </font><span style="color: black; font-family: Arial">difficulty </span><font face="Arial">finding enough patients to conduct adequate clinical research for these diseases in order to understand and cure them.</font><p align="center"> <a href="https://rarediseasesnetwork.epi.usf.edu/rdnwebapp/registry/descriptionandpurpose.aspx?ownerid=7&diseasetype=37"> <img border="0" id="img1" src="Buttons/B-Join-G-NP.jpg" height="30" width="150" alt="Join" fp-style="fp-btn: Soft Capsule 2; fp-font: Arial; fp-font-style: Bold; fp-font-size: 14; fp-font-color-hover: #0000FF; fp-font-color-press: #FF0000" fp-title="Join" onmouseover="FP_swapImg(1,0,/*id*/'img1',/*url*/'Buttons/B-Join-G-MO.jpg')" onmouseout="FP_swapImg(0,0,/*id*/'img1',/*url*/'Buttons/B-Join-G-NP.jpg')" onmousedown="FP_swapImg(1,0,/*id*/'img1',/*url*/'Buttons/B-Join-G-P.jpg')" onmouseup="FP_swapImg(0,0,/*id*/'img1',/*url*/'Buttons/B-Join-G-MO.jpg')"></a></div> </td> </tr> </table> <p align="left"> </p> </body> </html>